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Navigating Rare Journeys Together

Empowering individuals, families, and professionals with strategies, hope, and solutions to overcome the challenges of rare genetic conditions—unlocking each person’s fullest potential.

Photo by: Mark Carroll 

Meet Kendra, Your Pediatric Neuropsychologist

Dr. Kendra J. Bjoraker is a pediatric neuropsychologist with specialized training and expertise in rare genetic diseases. She served as faculty at University of Minnesota and Children’s Hospital Colorado/University of Colorado with extended studies in genetics, metabolism, white matter diseases and neuroimaging. She is an advocate, a presenter and researcher and has extended publications in rare genetic diseases.

 

Dr. Bjoraker is known nationally and internationally for her expertise in lysosomal storage diseases, peroxisome disorders and other rare inherited metabolic disorders. She is involved in multi-disciplinary research projects investigating the factors that predict and contribute to the neuropsychological and health outcomes in individuals with genetic and metabolic diseases. She is involved in multi-disciplinary research projects investigating factors that predict and contribute to neuropsychological and health outcomes in individuals with genetic and metabolic diseases.

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Kendra J. Bjoraker, Ph.D., L.P.

Pediatric Neuropsychologist

Consultation Services

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  • Analyze cognitive impacts of rare genetic conditions.

  • Review therapies for cognitive and behavioral outcomes.

  • Create accessible neurocognitive materials for diverse audiences.

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Adv0cacy

  • Advocate for IEPs, 504 plans, and educational accommodations.

  • Link families to healthcare, support, and education services.

  • Develop personalized strategies for cognitive and emotional needs.

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Research

  • Studying cognitive, emotional, and behavioral impacts of rare conditions.

  • Tracking rare genetic condition progression for long-term care insights.

  • Developing tailored assessments for rare genetic disorder challenges.

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Education

  • Presentations on numerous topics.

  • Presentations and training professionals, parents and patients.

  • Family meetings, seminars and organizations.

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Speaking

  • Delivered talks at conferences, workshops, universities, and patient organizations.

  • Hope through empathetic and empowering communication.

  • Family meetings, seminars and organizations.

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Area of Expertise

Consultation Services:

Empowering Familes

I provide specialized consultation on the cognitive and emotional impacts of rare genetic conditions. My services include supporting research, creating educational resources, and empowering families through advocacy and care planning.

Expertise:

Area of Focus

 

  • Lysosomal storage disorders

  • Peroxisomal disorders

  • Inborn Errors of Metabolism

  • Neurodevelopmental disorders

  • Neuromuscular disorders

Publications:

Over 40+ Publications

Dr. Kendra J. Bjoraker is a seasoned neuropsychologist with a robust portfolio of publications focusing on the neurocognitive and psychological management of rare metabolic and genetic conditions. 
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Ready to Connect?

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Reach Out for Personalized Support in Rare Genetic Disorders

Meet Kendra, Your Pediatric Neuropsychologist

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About Dr. Bjoraker

Uncovering insights into neuropsychological health

Dr. Kendra J. Bjoraker is a pediatric neuropsychologist with specialized training and expertise in rare genetic diseases. She served as faculty at University of Minnesota and Children’s Hospital Colorado/University of Colorado with extended studies in genetics, metabolism, white matter diseases and neuroimaging. She is an advocate, a presenter and researcher and has extended publications in rare genetic diseases.

Kendra J. Bjoraker, Ph.D., L.P. 
Pediatric Neuropsychologist

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Success Stories

Ronda Kani, MN

2 Weeks Ago

"Dr. Bjoraker has been an invaluable support for our family. Her deep knowledge and compassionate approach made a world of difference in helping us navigate our daughter's rare genetic disorder. Dr. Bjoraker's advocacy and dedication are unmatched, and we are incredibly grateful to have her guidance."

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Lee Tortal, NJ

2 Months Ago

"Working with Dr. Bjoraker has transformed our family’s experience. Her expertise with lysosomal storage disorders helped us develop a clear plan for our son’s care. She’s an incredible advocate for her patients and genuinely cares about their well-being."

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John Travets, NY

1 Months Ago

"Dr. Bjoraker’s dedication is unmatched. She guided us through every step of our child’s complex condition, providing essential insights and compassionate support. Her commitment to supporting families and advancing rare disease research is truly inspiring."

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Consultation Services

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  • Neurocognitive and Behavioral Outcomes for Natural History Studies and Clinical Trials

  • Protocol development; child development and disease progression

  • Expertise in neuropsychological profiles for specific rare diseases

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Adv0cacy

  • Parent and patient advocacy groups

  • Educational planning

  • Outreach and improving quality of life

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Research

  • Various publications on rare diseases

  • Collaborative research on urea cycle disorders

  • Multidisciplinary research in neuropsychological outcomes

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Education

  • Presentations on numerous topics

  • Presentations and training professionals, parents and patients

  • Family meetings, seminars and organizations

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Speaking

  • Delivered talks at conferences, workshops, universities, and patient organizations

  • Hope through empathetic and empowering communication

  • Family meetings, seminars and organizations

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